CFIDS Resources

 

Resources

Books

Articles

Web Links

Here is a list of organizations to contact for more information on CFIDS:

Whittemore Peterson Institute for Neuro-Immune Disease
Associated with the University of Nevada, Reno
Reno, Nevada
 

National CFS and Fibromyalgia Association
3521 Broadway, Suite 222
Kansas City, MO 64111
816-931-4777

They have available: quarterly newsletter $15 per year; general information packet $1; patient information packet $15; physician's packet $10; how to be a phone contact $4; how to form a support group $6; CFS information bibliography $3.50; referrals to local support groups.

SolveCFS
PO Box 220398
Charlotte, NC 28222-0398
704-362-2343 (info line)
(formerly "The CFIDS Association of America")

They have extensive educational information on CFS for patients and doctors. They also offer a quarterly newsletter for $35 per year.

Fibromyalgia Network
PO Box 31750
Tucson, Arizona 85751-1750
602-290-5508
602-290-5550 (fax)
1-800-853-2929

Services offered: FM Newsletter (quarterly) $15 per year USA, $17 per year Canada; referrals to local FM groups.

Department of Health and Human Services
Public Health Service
The Center for Disease Control & Prevention (CDC) MSA
1600 Clifton Road
Atlanta, Georgia, 30333
404-639-3311
404-639-1338 (direct line for CFS information)

They have a free CFS information pamphlet called "The Facts About Chronic Fatigue Syndrome," which you may request by writing to the address above.

US Department of Health and Human Services
Public Health Service Clinical Center Communications
National Institutes of Health
9000 Rockville Pike
Bldg. 10, Room IC255
Bethesda, Maryland 20892
301-496-2563

"Medicine for the Public" - You may obtain this pamphlet by sending a postcard to the address above.

National Institute of Health
Office of Communications
National Institute of Allergies and Infectious Diseases
Building 3 1, Room 7A32
9000 Rockville Pike
Bethesda, MD 20892
3301-496-5717

They have two free pamphlets on CFS. Write to the address above to request them. Ask for "CFS: A Pamphlet for Physicians" - publication 90-484 (for health professionals) or the "CFS: Backgrounder" (for CFS patients).

The American Council on Science and Health
1995 Broadway, 16th floor
New York, NY 10023-5860

They have a report on CFS available for $3.85.

 

Information on CFS may also be obtained by telephone as shown below:

National Jewish Medical and Research Center
1-800-222-LUNG (5864)

The CFIDS Association of America
1-800-442-3437 - 24 hour voice information line
1-900-988-2343 - $2.00 for first minute, $1.00 each additional minute

Centers for Disease Control and Prevention
404-332-4555 - 24 hour voice information line

National CFS and Fibromyalgia Association
816-313-2000 - 24 hour voice information line

 

 

The California Capital CFIDS Association, Inc., (CCCA) is a non-profit group for persons who have been diagnosed as having CFIDS (Chronic Fatigue Immune Dysfunction Syndrome) and/or related disorders, and their family members and friends. Our purpose is to provide support, information, coping strategies, and resources for the patients and families. We recognize that each patient needs to be under the care of his/her own physician, and urge each to seek medical advice on any modality of treatment from his/her own physician. The opinions expressed by authors or speakers are their own, and the group does not take responsibility for or insure the accuracy of any expressed opinions.

Resources
http://ottem.org/ccca/info/index.htm
Copyright © 1999-2000 California Capital CFIDS Association (CCCA). All rights reserved.